Stakeholders will be involved at all stages of the review, and will be invited to participate in consultation and engagement activities as they arise.
You can view ongoing and upcoming consultation and engagement activities in the relevant sections below.
Consultation and engagement activities
There are currently no open consultations or stakeholder engagement opportunities. A revised Statement is currently being drafted based on feedback received through the AHRA-facilitated workshops and Consultation Hub survey. Stakeholders will be notified when an opportunity to provide feedback on the draft Statement is available.
Completed consultation activities
Consumer Statement Workshop
On Tuesday 15 November 2022, NHMRC and CHF convened an online workshop to begin the review process. The Consumer Statement Workshop included 193 participants representing consumers, advocate groups, advisory groups, researchers, research institutions, universities, and policy makers from all over Australia.
Participants and those that were unable attend further contributed to the discussion by completing a Consumer Statement Workshop feedback form. A summary from the Consumer Statement Workshop has been published.
AHRA-facilitated Workshops
A series of Australia-wide stakeholder engagement sessions were held throughout March, April and May 2024 to collect stakeholder views on what could be included in the draft Statement. These were facilitated by the Australian Health Research Alliance (AHRA) and were a combination of in-person and online sessions attended by a total of 440 people. AHRA prepared a report summarising the workshop feedback, which is available in the ‘downloads’ section below.
Position paper and Environmental scan
NHMRC developed a position paper with advice from CHF and the Consumer Statement Advisory Committee (CSAC) to guide stakeholder involvement in this consultation process. The position paper provided examples of information which could be included in the revised Statement, and posed some specific questions which formed the basis of discussion at the AHRA-led workshops.
At the request of CSAC, NHMRC undertook an environmental scan of relevant grey and academic literature linked to the position paper content. The purpose of the scan was to identify the principles underlying good practice in consumer and community involvement in health and medical research, and roles and responsibilities of funders, research institutions, researchers, and consumers. It is intended to provide a summary of the global literature and should not be read as NHMRC’s position on consumer and community involvement in health and medical research. The position paper and environmental scan are available in the ‘downloads’ section below.
Consultation Hub survey
Stakeholders who were unable to attend any of the sessions, or who also wished to provide a written response to the questions in the position paper, could provide a submission directly to us through the NHMRC Consultation Hub. Submissions opened on 19 March 2024 and closed on 16 June 2024. 90 submissions were received through the Consultation Hub, and a further 12 written responses were received via email. The survey and email responses are available on the Consultation Hub and in the ‘downloads’ section below.
Online engagement report
NHMRC has developed a report that summarises and analyses the 102 written responses received through the Consultation Hub survey and via email. The report provides an overview of stakeholder feedback and should not be read as NHMRC’s position on what content will be included in the revised Statement. The report is available at Online engagement report with a PDF version available in the ‘downloads’ section.