The Australian Government is now in caretaker period. During this time, updates on this website will be published in accordance with the Guidance on Caretaker Conventions, until after the election.
Scope
The ME/CFS guidelines will provide advice on the diagnosis and management of ME/CFS. NHMRC recognises there are other conditions (such as long-COVID, postural orthostatic tachycardia syndrome (POTS) and fibromyalgia) that share common symptoms with ME/CFS, and we will make reference to these conditions where appropriate.
The guidelines are aimed at primary care, with a particular focus on the interactions between patients and general practitioners and appropriate referral pathways.
Stakeholder scoping survey
To better understand the needs of the community, a scoping survey has been developed and is now available on NHMRC’s consultation hub. NHMRC welcomes views from organisations or individuals. The survey includes questions relevant to people with lived experience of ME/CFS, health professionals and researchers.
The intent of the survey is to:
- understand the needs of the community regarding clinical practice guidelines
- understand potential enablers and barriers to the care of people with ME/CFS
- help inform priority areas for evidence review that reflect the needs of the ME/CFS community
- identify appropriate formats for the guidelines
- identify important areas for further research where the evidence base is lacking.
The views gathered from this survey will help inform the development of ME/CFS guidelines that are useful and address the priorities of the community.
The consultation is now open and will close on Sunday 27 April 2025.
View and participate in the survey on NHMRC's consultation hub.
This feedback will be considered by the Guideline Development Committee during the development of the ME/CFS guidelines.