These guidelines provide a framework in which medical research involving personal information obtained by Commonwealth agencies should be conducted, to ensure the information is protected.
Guidelines under section 95 of the Privacy Act 1988 (the s95 guidelines), first released in 2000, have recently been updated to accord with the Privacy Amendment (Enhancing Privacy Protection) Act 2012 which amends the Privacy Act effective 12 March 2014. These guidelines provide a framework in which medical research involving personal information obtained by Commonwealth agencies should be conducted, to ensure that such information is protected against unauthorised collection or disclosure. These guidelines were issued in March 2014 and re-issued, effective 11 November 2014, to correct some minor errors and address some formatting issues.
Further information on the 2014 amendments to the Privacy Act 1988 is available from the Office of the Australian Information Commissioner
Information on the role of Human Research Ethics Committees in health Privacy, including resources to assist HRECs apply the s95 guidelines are available under The role of Human Research Ethics Committees (HRECs) in health privacy.
Advice for Human Research Ethics Committees (HRECs) reporting on the application of these guidelines for the 2014 HREC annual reporting period is available on the NHMRC website under HREC Annual Reporting to NHMRC.