In Priority round 3, NHMRC has allocated funding to support a multidisciplinary, national team to establish and maintain a National Dementia Network.
The NHMRC National Institute for Dementia Research (NNIDR) is part of the Boosting Dementia Research Initiative and will target, co-ordinate and translate the Australian research effort in dementia.
NHMRC has allocated funding to support a multidisciplinary, national team to establish and maintain a National Dementia Network under PR3.
The objective of the Network is to improve the lives of people with dementia, as well as accelerating translation of interventions to treat and prevent dementia beginning with establishing and maintaining a national dementia registry as a national resource.
Flowing from the registry, the Network is expected to deliver the following outcomes:
- report on the natural history, disease trajectory and outcomes of dementia and cognitive impairment in accordance with the Framework for Australian clinical quality registries developed by the Australian Commission on Safety and Quality in Health Care
- establish suitable cohorts of highly characterised individuals as part of the registry that could participate in targeted and relevant clinical trials, and
- develop a network of trial sites, which can be used for clinical dementia trials.
To achieve the intended outcomes, the Network will need to be an effective collaboration of dementia researchers as well as experts in clinical quality improvement, epidemiology, biostatistics, clinical data management, bioethics, privacy law and research governance. To ensure adequate recruitment to the registry the Network will need to engage appropriately with primary care and clinician practitioner groups, memory clinics, hospitals, service providers and consumer groups.
Funding outcomes were announced by the Minister for Health, the Hon Greg Hunt MP, on 2 July 2018.